Schedule

Thu, 24 Oct

13:00 - 13:30
30 minutes
Conference opening: Welcome and introductions
Main Room
Day 1
13:30 - 13:50
20 minutes
Twinning project from 2020 until today
Main Room
Day 1
13:50 - 14:10
20 minutes
Twinning project and the input of patient organisation
Main Room
Day 1
14:10 - 14:20
10 minutes
Twinning project in reality - testimonials
Main Room
Day 1
14:20 - 14:30
10 minutes
Twinning project in reality - testimonials
Main Room
Day 1
14:30 - 14:40
10 minutes
Role of patient organisation in CF care
Main Room
Day 1
14:40 - 14:50
10 minutes
Romanian CF patient organisation
Main Room
Day 1
14:50 - 15:00
10 minutes
Discussion
Main Room
Day 1
15:00 - 15:20
20 minutes
COFFEE BREAK
Day 1
15:20 - 15:40
20 minutes
Importance of ECFSPR – situation in Eastern Europe
Main Room
Day 1
15:40 - 16:00
20 minutes
The role of registries to improve care for patients with CF in Romania
Main Room
Day 1
16:00 - 16:15
15 minutes
Situation in CF sites of Romania: Brasov
Main Room
Day 1
16:15 - 16:25
10 minutes
Situation in CF sites of Romania: Bucharest
Main Room
Day 1
16:25 - 16:35
10 minutes
Situation in CF sites of Romania: Bucharest - Marie Curie Emergency Children’s Hospital
Main Room
Day 1
16:35 - 16:45
10 minutes
Situation in CF sites of Romania: Constanta
Main Room
Day 1
16:45 - 17:15
30 minutes
Situation in CF sites of Romania: Cluj-Napoca
Main Room
Day 1
17:15 - 17:25
10 minutes
Situation in CF sites of Romania: Iasi
Main Room
Day 1
17:25 - 17:40
15 minutes
Timisoara National Reference Centre
Main Room
Day 1
17:40 - 18:00
20 minutes
Life of CF patients in Romania
Main Room
Day 1
18:00 - 18:20
20 minutes
Discussion
Main Room
Day 1

Fri, 25 Oct

9:00 - 9:20
20 minutes
The sweat test as essential part of CF diagnosis and newborn screening
Main Room
Day 2
9:20 - 9:40
20 minutes
Indications for sweat test - Early diagnosis of CF is a way to improve the prognosis of the disease
Main Room
Day 2
9:40 - 10:00
20 minutes
Genetics and CF – importance of genetic testing in context of new therapies
Main Room
Day 2
10:00 - 10:20
20 minutes
Genetic testing options in Romania for CF patients
Main Room
Day 2
10:20 - 10:30
10 minutes
Newborn screening in Romania
Main Room
Day 2
10:30 - 10:40
10 minutes
Discussion
Main Room
Day 2
10:40 - 11:00
20 minutes
COFFEE BREAK
Day 2
11:00 - 11:20
20 minutes
Standards of CF care in Europe
Main Room
Day 2
11:20 - 11:35
15 minutes
Standards of CF care in Romania
Main Room
Day 2
11:35 - 11:50
15 minutes
Multidisciplinary CF team management
Main Room
Day 2
11:50 - 12:00
10 minutes
Multidisciplinary CF team
Main Room
Day 2
12:00 - 12:10
10 minutes
Role of the physicians in CF team
Main Room
Day 2
12:10 - 12:30
20 minutes
Role of the CF nurse in CF team
Main Room
Day 2
12:30 - 12:40
10 minutes
Learning package: Education learning platform of ECFS
Main Room
Day 2
12:40 - 12:50
10 minutes
Discussion
Main Room
Day 2
12:50 - 13:40
50 minutes
LUNCH
Day 2
13:40 - 14:10
30 minutes
Specifics of adult CF care
Main Room
Day 2
14:10 - 14:25
15 minutes
Infection control in CF
Main Room
Day 2
14:25 - 14:40
15 minutes
Situation with adult CF care in Romania
Main Room
Day 2
14:40 - 14:50
10 minutes
The role of breathing exercises in managing anxiety in adult patients with CF
Main Room
Day 2
14:50 - 15:10
20 minutes
Psychosocial aspects of CF
Main Room
Day 2
15:10 - 15:30
20 minutes
Responding to increasing adult patient numbers in our region
Main Room
Day 2
15:30 - 15:50
20 minutes
Lung transplantations for CF patients in Romania
Main Room
Day 2
15:50 - 16:00
10 minutes
Discussion
Main Room
Day 2
16:00 - 16:10
10 minutes
COFFEE BREAK
Day 2
16:10 - 18:10
2 hours
ROUND TABLE: TWINNING PROJECT ( Meetings of Twins PO representatives )
Main Room
Day 2
19:00 - 22:00
3 hours
GALA DINNER
Day 2

Sat, 26 Oct

9:30 - 10:00
30 minutes
CFTR Modulators and their indication criteria
Main Room
Day 3
10:00 - 10:20
20 minutes
Access to modulators in Romania - therapy of CF lung disease
Main Room
Day 3
10:20 - 10:50
30 minutes
Modulators and standard therapy of CF lung disease
Main Room
Day 3
10:50 - 11:00
10 minutes
Microbiology in CF lungs
Main Room
Day 3
11:00 - 11:15
15 minutes
Chest physiotherapy as an important part of CF lung disease treatment
Main Room
Day 3
11:15 - 11:30
15 minutes
History of physiotherapy of CF in Slovakia
Main Room
Day 3
11:30 - 11:45
15 minutes
Playing sports and physiotherapy in cystic fibrosis - Play For Life
Main Room
Day 3
11:45 - 11:55
10 minutes
Role of physiotherapist in CF team
Main Room
Day 3
11:55 - 12:05
10 minutes
Discussion
Main Room
Day 3
12:05 - 12:20
15 minutes
COFFEE BREAK
Day 3
12:20 - 12:40
20 minutes
Treatment of gastrointestinal manifestations of CF, pancreatic insufficiency, CFRLD
Main Room
Day 3
12:40 - 12:55
15 minutes
CF related diabetes mellitus
Main Room
Day 3
12:55 - 13:15
20 minutes
Nutrition of CF children and adults with CF - guidelines
Main Room
Day 3
13:15 - 13:25
10 minutes
Nutrition of CF patients in Romania
Main Room
Day 3
13:25 - 13:35
10 minutes
Role of nutritionist in CF team
Main Room
Day 3
13:35 - 13:45
10 minutes
Role of psychologist in CF team
Main Room
Day 3
13:45 - 13:55
10 minutes
Discussion
Main Room
Day 3
14:00 - 14:20
20 minutes
CONFERENCE CLOSING - Thank You!
Main Room
Day 3
14:30 - 15:15
45 minutes
Workshop 1: Sweat test in practice ( for ECFSPR collaborators )
Second Room
Day 3
14:30 - 16:00
1 hour 30 minutes
Workshop 3: Meeting of representatives of POs in Romania with PO from Belgium
Main Room
Day 3
15:15 - 16:00
45 minutes
Workshop 2: ECFS Patient Registry ( for ECFSPR collaborators )
Second Room
Day 3

Thu, 24 Oct

Conference opening: Welcome and introductions

Twinning project from 2020 until today

Twinning project and the input of patient organisation

Twinning project in reality - testimonials

Twinning project in reality - testimonials

Role of patient organisation in CF care

Romanian CF patient organisation

Discussion

COFFEE BREAK

Importance of ECFSPR – situation in Eastern Europe

The role of registries to improve care for patients with CF in Romania

Situation in CF sites of Romania: Brasov

Situation in CF sites of Romania: Bucharest

Situation in CF sites of Romania: Bucharest - Marie Curie Emergency Children’s Hospital

Situation in CF sites of Romania: Constanta

Situation in CF sites of Romania: Cluj-Napoca

Situation in CF sites of Romania: Iasi

Timisoara National Reference Centre

Life of CF patients in Romania

Discussion

Fri, 25 Oct

The sweat test as essential part of CF diagnosis and newborn screening

Indications for sweat test - Early diagnosis of CF is a way to improve the prognosis of the disease

Genetics and CF – importance of genetic testing in context of new therapies

Genetic testing options in Romania for CF patients

Newborn screening in Romania

Discussion

COFFEE BREAK

Standards of CF care in Europe

Standards of CF care in Romania

Multidisciplinary CF team management

Multidisciplinary CF team

Role of the physicians in CF team

Role of the CF nurse in CF team

Learning package: Education learning platform of ECFS

Discussion

LUNCH

Specifics of adult CF care

Infection control in CF

Situation with adult CF care in Romania

The role of breathing exercises in managing anxiety in adult patients with CF

Psychosocial aspects of CF

Responding to increasing adult patient numbers in our region

Lung transplantations for CF patients in Romania

Discussion

COFFEE BREAK

ROUND TABLE: TWINNING PROJECT ( Meetings of Twins PO representatives )

GALA DINNER

Sat, 26 Oct

CFTR Modulators and their indication criteria

Access to modulators in Romania - therapy of CF lung disease

Modulators and standard therapy of CF lung disease

Microbiology in CF lungs

Chest physiotherapy as an important part of CF lung disease treatment

History of physiotherapy of CF in Slovakia

Playing sports and physiotherapy in cystic fibrosis - Play For Life

Role of physiotherapist in CF team

Discussion

COFFEE BREAK

Treatment of gastrointestinal manifestations of CF, pancreatic insufficiency, CFRLD

CF related diabetes mellitus

Nutrition of CF children and adults with CF - guidelines

Nutrition of CF patients in Romania

Role of nutritionist in CF team

Role of psychologist in CF team

Discussion

CONFERENCE CLOSING - Thank You!

Workshop 1: Sweat test in practice ( for ECFSPR collaborators )

Workshop 3: Meeting of representatives of POs in Romania with PO from Belgium

Workshop 2: ECFS Patient Registry ( for ECFSPR collaborators )

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